8 May 2020
My brother died last Tuesday. Tomorrow would have been his 33rd birthday. It was very sudden and unexpected.
It wasn’t COVID-19.
But COVID-19 helped to turn his death into something beautiful.
My brother was handicapped with an intellectual disability, autism spectrum disorder and epilepsy. He had also just started to walk again, after shattering both legs in a terrible fall in the mountains, a difficult air rescue out, seven surgeries and three months in hospital.
He wasn’t born disabled. All it took was one tick bite. And our family's lives changed forever.
But his life was not small, or hidden. Ralph touched so many people - in ways both big and small.
This is his story. And the meaning of a life like my brother’s for us all.
I was almost 16 when my brother was born. My older brother almost 18. Ralph was a very - very! - unexpected addition to the family.
What’s it like to be in high school, where your mother is your English teacher...and she’s pregnant...and then you have a baby brother?
In a word: awesome.
Precisely at a time when I wanted my parent’s attention anywhere but on me, my brother’s arrival ensured exactly that.
Frankly, we adored him. He had four parents, not two, really. It was certainly one hellava way to experience up close and personal just how much work babies are. I needed no schooling about the value of contraception after that.
Our lives changed irrevocably when Ralph contracted tick bite fever when he was just 20 months old. His temperature rose so high that he was overtaken by a temperature convulsion...and then remained unconscious. Rushed into hospital, my older brother and I waited anxiously at home. When Dad called, terrible hours later, he was in tears. The doctors had done everything they could, he explained. Our parish priest was at the hospital with Ralph, praying over him. Would we please call the church and activate the prayer chain?
Miraculously, Ralph survived, prayed to life by his mother. He regained consciousness after five days. But he had suffered a cerebral edema, and the doctors warned that he would almost certainly have brain damage. Only time would tell how bad it would be.
When Ralph came home, he was like a newborn. He couldn’t even lift his head. We celebrated each new development milestone reached (again). We had so much hope when he first reached for Dad’s pen in his pocket as Dad scooped him up into his arms after coming home from work - that had been Ralph’s characteristic gesture.
And then the seizures started. First petit mal. Then grand mal. And it also became clear Ralph had indeed suffered brain damage.
Our hearts broke again.
But we soldiered on.
Through the tantrums, the despair, the laughs. Ralph was an utter rapscallion. He would get into everything. We became a lock-everything-up-and-hide-the-key family. He refused to sleep in his bed. He waited until Mom and Dad came to bed, then crept into their room, and lay down on the floor in their room to sleep.
Exhaustion and being at our wits end became the new normal. “I don’t know how you cope,” asked one family friend in disbelief as Ralph trashed everything again one afternoon. “What choice do we have?” we asked back. “We cope because there is no alternative”
It’s a question all too many families of children with special needs face. And it’s the wrong question. Every family - truly, every family - copes the best way they know how. From the outside looking in “How do you cope” is a natural question. From the inside looking out, coping is just what you do. There is no “how” to coping. There’s just “you cope.”
My older brother and I grew up, went to university, got jobs, travelled overseas, met our future partners, had our own children.
Ralph went to a special needs school. Then, at 18, to a large adult care center providing mostly for Down Syndrome adults. They had just established a new addition where they were taking in other forms of intellectual disability and it was possible to buy a “life right” to fund the expansion and secure a coveted spot.
Mom and Dad moved quickly to secure Ralph a place. They were viscerally aware that because of their age, they had to get Ralph settled in a long-term care home as soon as possible. With my older brother and I with our own lives and families, they were determined not to place the burden of Ralph’s future care on us. And to do everything they could to secure Ralph’s future. They had heard too many stories of families who kept disabled members at home, until the parents died, and then it was too late: there was no one to take in the now much older disabled adult, due both to their age and their inability to adapt to life in a group home.
Mom and Dad were determined to avoid that mistake.
Life, it seemed, had a different plan.
By 2020, Dad - now 75 - (Mom having passed away in 2017), was down to the one last option in the country that could take Ralph with his mix of both intellectual disability and challenging behaviour: Open Circle, in Cape Town. He had tried every other home in the country that would accept him.
COVID-19 and South Africa was in one of the strictest lock-downs in the world, with all inter-provincial travel banned. Except for funerals.
So Dad had to go all the way to the High Court to get a permit to travel to get Ralph there, after the local police, local magistrate and COGTA (Cooperative Governance Traditional Affairs - the coordinating governmental authority for South Africa’s COVD-19 response) all refused to grant a permit.
The court documents make for searing reading. From 1989 to 2020, Ralph had been admitted 33 times to 28 different places. He had been expelled from every single residential group home my parents had tried - including the very group home my parents had founded and funded along with some other families.
The “short” list of Ralph’s key risky behaviours included (but there were many many more incidents)
Throughout the years Ralph had been on a wide variety of anti-epileptics and drug trials. Nothing had ever brought his seizures fully under control. Complicating matters severely was the well known fact that many anti-epileptic drugs have an adverse impact on behavior and vice versa.
Periods of intense anxiety would also cause seizure spikes, a phenomenon called Psychogenic Nonepileptic Seizures (PNES), that is only recently becoming more studied - and is still barely understood.
And, after a decade of trying to understand the triggers of Ralph’s violent outbursts, his team finally concluded that his sudden, unexplained outbursts of rage were a form of seizure and totally outside his control, or the control of the carers looking after him.
But whatever the cause, these explosive outbursts were real, frightening, dangerous, getting more frequent and severely complicating his care. Living at home with Dad was simply not a viable option - for Ralph or Dad.
Total seizures in Ralph’s lifetime ran into many thousands. And with each seizure his neurological function would decline that tiny little bit more, and his challenging behaviours increase that tiny little bit more, such that by the end of 2019, there was only one facility left in the country that had the potential capacity to deal with Ralph short of complete psychiatric institutionalization (and even that was questionable) or homelessness (more probable).
The High Court case made the news in South Africa, with the headline “Lockdown favours the dead over the living.” We heard from Dad’s lawyer that it likely helped many other families. “It appears that the judgement has made a lot of people descend on the Government for help armed with the newspaper article. Looks like you have helped many and caused the Government to look at amending their regulations.”
For Dad, however, it was a pyrrhic victory. The High Court had given him 5 days to complete the move. Exhausted - mentally and emotionally - from the isolation, the caregiving, separated from family, the vigilance to keep himself and Ralph safe, and the incredible emotional, mental and financial burden of pulling together an urgent High Court case, he somehow managed the 1,500km trip from Howick to Cape Town. Calling my older brother and I along the way to talk to him and keep him awake and going.
He went through 10 roadblocks on the way, but not one - not a single one - looked at the court papers permitting him to travel. Indeed, the police actually told Dad en-route he should just have faked a death-certificate and said he was going to a funeral. The utter disconnect between what he had been told was the only way to travel (a ruling from the High Court case) and the reality on the ground, beggars belief. We still don’t understand it.
But Dad and Ralph had arrived safely in Cape Town, awaiting his move to Open Circle, so we were hopeful - for the first time since 2017.
But Ralph was not.
Ralph was in torment.
His memories of Cape Town were of his four recent psychiatric hospital admissions in the state hospital, a three month stay in the state’s psychiatric residential institution and the group homes and sheltered workshops from which he had been expelled.
His anxiety was at a fever pitch. While all of us knew that Open Circle was his last, best bet, Ralph could not understand this.
And so his anxiety spiked...and spiked...and spiked again. Like his temperature had risen all those years ago. Until he did not survive that one last epileptic seizure.
Reading all of this and you would be forgiven for thinking that Ralph’s life was misery and living with him misery. For sure, the last 6 months had been particularly hellish for my father, but that would be an incomplete picture. And not do justice to the life my parents carefully nurtured for Ralph, or the life Ralph actually enjoyed.
If there was one thing that emerged so powerfully and beautifully from the virtual memorial service we had for Ralph, was just how much Ralph had been fully integrated into our family’s life - both immediate family and our larger friendship circles.
We loved camping, hiking and climbing - so Ralph came along too, and loved it. After Dad injured himself and needed to turn to kayaking instead, Ralph came along too. Weddings, funerals, family gatherings, family holidays - Ralph was always there, a member of the family the same as everyone else. As Dad moved into retirement and got out even more, Ralph joined him even more, and was warmly embraced by the various hiking, climbing and kayaking groups Dad was part of.
Many of these friends joined Ralph’s memorial service. And shared beautiful and warm memories, and shed tears, and read poems, and offered tributes to Ralph and Dad.
This was one of them:
The thought and prayer that Ralph had gone ahead of us, again, to show us the way...brought most of the 200+ in the service to tears.
When we put together the slideshows of Ralph showing his love of the mountains, his connection with family and friends, what we were reminded of so poignantly - and which the challenges of recent years and months had obscured - was just what a happy, sunny, cheery, delightful, full of mischief boy and young man he was. His life was not that of one being trapped in a deteriorating mind. It was a life of great joy and connection.
Ralph: Son, brother, uncle
Music: Special Star, by Mango Groove
It was Ralph who brought my brother and sister-in-law together. She was one of his early student carers, providing relief and respite to my parents. Ralph was also beloved by his nieces, who have many happy memories of hikes, building puzzles and playing snakes and ladders with him.
After Mom’s death, Ralph gained two “other Moms”. Dad’s housekeeper, turned carer, was beloved by Ralph. He turned to her repeatedly for solace. She in turn loved him like he was a son. It was truly special to watch. When Dad met his amazing new partner, Ralph’s gentle, open spirit engaged her too.
Ralph’s amazing ability to connect with others was one of the other abiding themes of his service.
Many of Ralph’s early teachers had insisted that Ralph would never learn to read or write.
It was his speech therapist in the early 2000s who refused to accept this limitation placed on Ralph, and worked with him to learn how to do both. During the service she shared how formative this experience had been for her too, as it had come at the beginning of her career. Going against the consensus that it was a fool's errand to try to teach Ralph to read and write, she trusted her sense that Ralph was desperate to learn how to communicate. And he did. She shared how much of a lesson this taught her: never to limit her expectations of what disabled people are capable of achieving.
After Mom’s death, Dad gave Ralph Mom’s phone, so Dad could contact Ralph regularly at his group home. Ralph had other ideas and soon discovered WhatsApp. And then...well, Ralph’s communication just exploded. It was like he had finally been given the key he needed to open the door he had been standing in front of for years.
WhatsApp became his primary form of communication, especially of his feelings and emotions - something he struggled incredibly to convey in actual conversation.
In 2019, Ralph sent Dad over 4,500 WhatsApp messages - and that was just to Dad. There were many more thousands sent to the rest of us. Dad periodically tried to limit his sometimes inappropriate calls and messages by “cleaning up” his address book. But Ralph just re-entered numbers from memory.
His messages gave us an insight into his inner reality, and are a precious treasure to us.
He also became a highly competent internet surfer - finding anything at all that he wanted and sharing it to us via WhatsApp. The family joke during the service was that we better expect him to find the recording of his own service on the cloud.
But the most profound, and important, aspect of Ralph’s life, is what he taught all of us about disability.
First, all too often still, children and adults with intellectual disabilities are “hidden away” - from families, from society. Their odd behaviours and awkward communication too uncomfortable and strange for the neurotypical to bear. So we’d rather just not know, not deal.
But Mom and Dad had made an early decision never to do that, always to treat Ralph as the member of the family he was, and to include him like we would any other member of the family. For sure, it was uncomfortable at times. There was more than one occasion when the family was invited to something, but Ralph was asked not to attend. My parents always declined those invitations.
Then there was the matter of Ralph’s service. With us all separated under lock down, and Dad overwhelmed by too many separate messages, we set up a temporary WhatsApp group, directing everyone there as the best place to share a condolence message, a memory, a story and get details of the service. Membership of that group exploded, It included Ralph’s carers, Mom and Dad’s university friends, extended family, friends of both my older brother and I going all the way back to our high school days... There were people from literally every time in all of our lives - and Ralph’s life...and some that we had not seen in decades. We were stunned.
We had thought the service would be small - maybe 20 or 30 people. But as the Zoom log-ins reached 40, then 70, then quickly approached 100, each with on average 2-3 people behind the camera, I had to upgrade my Zoom account on the fly just to make sure we could accommodate everyone.
In the end we reckon we had some 200 or more on the call. It was the largest Zoom meeting I had ever hosted.
And it was almost certainly larger than would have been possible or likely under “ordinary circumstances”. That Zoom call spanned 14 time zones, from us in the Eastern US, all the way to Australia.
Many were there to support Dad, my older brother and I.
But all were there because Ralph had touched them in ways big and small.
A cousin who barely knew Ralph shared “I didn’t spend much time with Ralph, but in the past when I have been down and out, I have sometimes thought about him and how despite all the immense difficulties he endured, he still had fun and took enjoyment in things. Makes me stop and try to do the same.”
Someone who had only met Ralph in the last twelve months said “In the short time that I knew Ralph I was always struck by how he was such a quick thinker, He had the ability to be very specific and precise with the details about his traveling experiences.”
From another of Dad’s “mountain cronies”: “It was at the Johnson Hut that Ralph and I sat on a rock overlooking the Helderberg Mountains. It was late afternoon with gentle light on the distant scene. His rocking stopped as I placed my hand on his knee. I asked him about his favourite place. The Drakensberg, of course. His rapid, hesitant speech quietened as his mind took over the memories dear to him. He hardly needed the prompting of the few questions I threw in. That time spent with Ralph on the rock was brief, but one that stays in my memory as a beautiful connection with him.”
Ralph: Hiker, climber, paddler, explorer. Friend and companion.
Music: Great Heart - by Johnny Clegg and Savuka
What was planned as a 60 to 90 minute service, became a nearly two and half hour tribute.
But there was also another focus to all the tributes to Ralph. And these were tributes to our family - and in particular to Mom and Dad - for all we had done to show how a life like Ralph’s can be integrated into normal life. Dad, of course, shies away from this, pointing out that Ralph was, in so many ways, an “everyman” who could speak for many of the handicapped because he had the ability to communicate - more than so many.
And that is true.
But what is also true is that Mom and Dad worked tirelessly for the needs of the handicapped. Dad was a founding and active member of the Southern Intellectual Disability Initiative in Cape Town, helping to raise R12 million to establish three new group homes, and a fourth state home, the Open Circle. More importantly than raising funds, SIDI brought together a true partnership of government, families, donors, non-profits, health-care providers, homes and others - a new, and needed model in South Africa. For the first time, everyone was actually talking to each other, in one room.
In the words of Feroza Cassim, the SIDI Group Home Coordinator, at the end of Ralph’s service, “This is the legacy Ralph leaves behind. This was his purpose. He was a means of awakening and steering the strength of his parents in driving this initiative, which will continue to help those in need for years to come. Parents achieve what we as professionals often struggle to achieve.”
It can be excruciatingly hard to be the parent or sibling of an intellectually disabled family member. There can be moments of despair, doubt, grief, heartache and exhaustion. But there is so much more to their lives than that as I hope you can see. They call forth from us a responsibility, a care, a compassion, a joy, a purpose. This is what humanity - everywhere - asks of us.
So we celebrate Ralph. An integral member of our family. And a vital part of our society.
The only way out is through
See other posts on resilience by clicking the Resilience category on the right side bar.
(Read the companion post on my personal blog: "Feelings-Real: Processing Loss")
Over the last week, Iain, our 7 year old son, mourning the absence of his father who is away was sitting vigil at his father’s bedside has, at various times come to me to say:
“I feel like my windpipe’s being crushed.”
“On a 1 to 10 scale, it’s a 10. I feel awful.”
“My head feels all hazy and fuzzy.”
“I feel like I have daggers in my head.”
“Why is it so painful?”
“My whole body hurts.”
And, “Is this all just feelings?”
To which I replied “Yes, and what you’re feeling is still real. Not medicine-needing real, but feelings-real.”
He had asked for a Tylenol or an Ibuprofen. And only as I write this now do I realize: this is where it starts. Popping a pill will not make you feel better. Because this is not illness-real, it’s feelings-real. And the only way to change feelings-real, is to change the feelings behind them. And the only way to do that is to accept that we DO control our feelings - by what we think, what stories we tell ourselves. No pill or bottle or drug can solve that.
It starts here. Resilience. Emotional fluency. Listening to our bodies. Honoring our bodies. And not looking for quick fixes. Feel the pain, the hurt, the despair, the loneliness, the heartache. Feel all of of it. Let it wash over you. Let it cleanse you. So that you can also feel joy, hope, clarity, serenity, purpose, love, openness, gratitude. “Numb the dark and you numb the light” says Brene Brown. Wade into the dark water, the mire and the muck. It’s the only way to cross to the other side, to the light. Otherwise you stay where you are. On this bank. Looking across to the other, wishing you could be there, but not knowing how to.
The only way out is through.
Towards a trauma-informed coaching model
The first time I heard the American phrase “when life gives you lemons, make lemonade” I registered it's meaning, but didn’t connect with it much. I heard it a few times over the years, and each time I became a little more skeptical of it. But I wasn’t quite sure why.
It was after the birth of our son, when I had had an emergency C-section and a man remarked “Well, healthy baby, that’s the important thing,” that I started to have a glimpse into what bothered me about this phrase. Yes, the C-section was necessary. Yes, it meant we had a healthy baby. But no, that didn’t mean I still didn’t have some pretty strong emotions about having had a C-section. Well intentioned through the man’s comments were, implicit in them was that my experience, my suffering, my feelings didn’t really matter. I had now become a mother - and therefore secondary. It was the baby that counted. “But what about me?” my insides screamed as I smiled kindly at the man.
After everything fell apart at work in 2017, and I collapsed entirely from the re-triggering of my PTSD, I tried out a few coaches. One of them asked me to make a list of reasons why what was happening could be a good thing. Now, one of the axioms in coaching is that "in life there are no challenges or problems, there are only opportunities". Intellectually I can get that. But emotionally - and especially when dealing with trauma and traumatic events - that philosophy can be not only decidedly unhelpful, it can be downright dangerous.
What I have learned from my own healing, research, and practice is that it is imperative that a person’s pain and suffering is acknowledge and validated FIRST. Yes, eventually - it may take hours, days, weeks or months, depending on the degree of pain, suffering or trauma - they will be at a place to start asking the question “how could I turn this awful experience into an opportunity”. But to ask that question of them too soon is to essentially dismiss their emotions and in so doing add to their suffering.
And that is why you will never hear me use the phrase “when life gives you lemons, make lemonade”. Or similar. A trauma-informed approach to coaching is based on recognizing that overwhelming psychological experiences rob us of our ability to access our rational brains. We HAVE to feel emotionally safe first before we can begin to do any of the other processing and healing. Emotional safety is the exact thing that traumatic experiences steal from us.
When, during coach training, I pushed back against the concept that “in life there are no problems, or challenges, there are only opportunities”, explaining my reasoning, the trainer thought for a while then posed “a lemon is a lemon, it’s nature is to be sour, it’s not the lemon’s fault, right?”.
Sorta. But not quite.
This gets closer towards acknowledging and validating that the pain just is - it’s the inherent consequence of experiencing traumatic events. But it’s still not quite validating that one of the worst aspects of trauma is that the victim so often feels that they were in someway responsible for it. “If only they had…," they can't stop themselves from wondering.
In my case, a very large part of my workplace trauma was I was being directly told, in the most cold-hearted way imaginable, that I was solely and directly responsible for EVERYTHING. If the team was having challenges, it was me. If there was negative reaction, it was me. If people were feeling overwhelmed, it was me. If people disagreed on the best strategy, it was me. Rationally, of course it couldn't possible be all me. But in trauma there was no way I could access that thought. I was a failure, I was cursed, I could not do anything right.
This is what I call the secondary trauma. And in some cases it is worse than the primary trauma. If I had been emotionally resilient going in, that feedback would still have been intensely painful and quite possibly devastating. But precisely because what we were working on was a big innovative project that was pushing everyone’s comfort levels and the stress was building, my emotional resilience was way down. So I fully bought in - for a while - that it was all me. That I was the problem. That I had to “fix me”. And that compounded the traumatic nature of the experience.
“I had brought this on myself”, was the story I was telling myself.
Yes, no and maybe.
Certainly I had some degree of responsibility. Was it 100%? No, no and no. But it took me weeks and some very intensive therapy to get that point emotionally. And I emphasize the emotional part because it is the emotional part of the brain that drives trauma. Our rational brain is literally “off-line” during traumatic experiences. Our older, reptilian brain takes over during times of threat and danger - it has too, it is what it is designed to do - to keep us safe. And while my life was not in physical danger, the brain doesn’t actually distinguish between threats to one’s physical self and threats to one’s sense of self. To the brain they are one and the same thing. And so until I could start to feel emotionally safe again, with people who truly cared for me, and who were trained in trauma and were gentle and compassionate and moving very very slowly and gently with me, there was simply no way I could start to do any of the work of parsing out what I was responsible for and what I was not responsible for.
Once I got there, it was crystal clear that in no way was I 100% responsible. Indeed, the overwhelming majority of people I worked with had nothing BUT positive things to say about me! So then I was left with the incredibly hard, devastating and painful fact that for reasons I couldn’t fully understand, I was being deliberately targeted because somewhere, somehow, a few people didn’t feel safe with me. Was that solely my fault? Or did they have a role to play too? Of course they did! But what I’ve learned since then is that people will do just about anything to discharge their emotional pain onto others, to blame or shame others as a way to deal with their own issues, rather than accept responsibility for their own feelings.
And so that is why that request from a potential coach to “Imagine there's a panel of angels (or whatevers) who custom-made the perfect spiritual challenge for you to support you in developing whatever muscles most need it. How is this situation perfect?” came at the wrong time.
Yes, a year and a half later, now I can see this whole experience as a gift. It was most definitely a gift I didn’t want, or ask for. It was a very very painful, devastating and hurtful gift at the time. But by doing the work with an amazing, supportive team who really understood trauma, I do now see it as a gift - the full measure of which I am continuing to discover every day.
And so that is why I will never say to someone “when life gives you lemons, make lemonade”. I will never ask you to just to accept that it is the nature of a lemon to be sour and bitter. And I will never ask you to question if it is indeed, a lemon at all. Because when you get to the point - with me, or with someone else - of feeling emotionally safe because your pain and hurt is totally acknowledged and validated - then and only then will you be ready to ask the question yourself. I won’t need to. YOU will be the one to ask it.
And then slowly, safely, and in a very gentle and compassionate way, I can support you on the journey of writing your own story about how you are going to define for yourself the meaning of what has happened. Meaning that empowers you. Meaning that gives you great confidence and a deep, sure sense of your value and self-worth.
“Sadly, it's not illegal to be an asshole,” my lawyer said.
And there it was. I had been through hell, but you can’t sue a bully - unless you can prove discrimination or something else illegal. And they had covered their bases well. Which left me - and indeed anyone looking to move on from these experiences - where?
Resilience. Rising strong. Not letting it get to me. Much easier said than done. So how, exactly, does one do that?
As I am a resilience coach this is a important topic for me. I see lots of posts in the future on this topic. As a beginning what exactly is resilience? And why does it matter?
There are scientific, medical, psychological, environmental and many other definitions of resilience. For me, I define it as that band of tolerance in which things can happen to one - and one may find them intensely uncomfortable, painful even - but one can still stay in choice and not be triggered into overreacting, or its corollary, under-reacting (freezing, or going numb). It’s that band where we have ups and downs, good days and bad days, hurts and joys, but in which we still feel essentially ourselves. That band where we can respond rather than react or not react at all.
It’s important because the wider our band our resilience, the more easily we can recover from the hard things that life throws at us. We will still feel challenged; we will still feel hurt, pain, fear, loss, grief, anger, or whatever else a particular event may evoke in us, but we don’t stay there as long and don’t experience them quite as severely as we otherwise might.
The good news is that resilience is not some inherent character trait. You are not born with a certain amount of resilience and that’s it. Resilience can be learned. It’s like a muscle that, with regular exercise and care, can get both stronger AND more supple. Even better, unlike for those of you who hate going to the gym (that’s me), building resilience is not like slogging through an arduous work-out. Building resilience can be downright enjoyable because - hey, bonus - one part of building resilience is doing things that you actually enjoy.
Some of you already know this. You are what Brene Brown would call the “whole-hearted”. Your band of resilience is already wide enough that when you have the misfortune to encounter one of the world’s assholes, you see them for who they are. Indeed, you even have compassion for them. You know that it’s about them, not about you. But for the rest of us, we have to work a little (or a lot!) harder to get to that place. We have to learn the skill of resilience.
One assumption that I’ve had to unlearn is that resilience is has nothing to do with being tough or thick-skinned. Rather resilience is, at its core, knowing deep down inside that we are worthy. And for many reasons - how we were brought up, the culture and community in which we were raised, our school experiences etc. - some of us have a harder time believing that than others.
I know, that sounds really woo-woo and flakey. That was my response when I first started this work. And yeah, denial that I had a problem with self-worth too! But as I have been interviewing people and listening to their stories about dealing with assholes, the pattern was very clear. The only difference between those who struggled to know how to deal with bullies, and those who didn’t, was that the latter had enough confidence in themselves to set boundaries. They could say “No, that’s not acceptable.” That’s it. They still got hurt. They still doubted and questioned themselves. They still got angry. But they didn’t take on internally what someone else might have said about them or to them, and they didn't tell themselves that they were somehow responsible for the other person’s poor behavior.
I’m “sensitive”, as my mother would say, not necessarily happily. And I’ve decided that I’m OK with that. What I’m not OK with anymore is extrapolating the hurt and pain I feel when encountering insensitive, domineering, critical people to “there’s something wrong with me.” My journey towards resilience started precisely because my old response was to take it to be about me. And, well, that didn’t end well for me. Indeed, I eventually fell apart. Quite literally. But that’s another story. I still flinch, I still get riled up when people make insensitive comments. It still gets to me. But now I’ve figured out how not to take it on - how not to make it about me.
Greater resilience is also not about caring less, or armouring up so that things bounce off of us. One person I interviewed had a lovely image. “Imagine you’re being shot at with arrows. Resilience is that the arrows still hit and wound you. But now, instead of leaning in to the arrows or, worse yet, pushing them further into you, you simply take them out, drop them on the ground, walk away, and go and get bandaged up. And in so doing you heal much more quickly.”
I can’t take down all the assholes in the world. I might be mighty, but I am not, sadly, magical. But I can help people build their resilience. In future posts I’ll write more as to how. For starters here’s a link to a recent New York Times article on building resilience as an adult. Google “how to build resilience” and lots more will come up.
If resilience is something you want more of, join me. And if resilience is something you already have, share what you do to build and maintain your resilience. Either way, drop me a line. I’d love to talk with you.
Sue Mann - Coach
Reflections on how we reclaim and sustain our worthiness in the face of falls and challenges.